Has anyone who has POEMS Syndrome tried Revlimid? My husband took it only for 3 days and was admitted to the hospital for 4 days due to bad side effects. He became dehydrated, had shortness of breath, very fatigued, legs/hands felt stiff (feeling is like over-working out) and a lot of numbness. It's been 11 days now since he was discharged from the hospital and he still has a lot of stiffness in hands/legs, some neuropathy but not bad all the time. He's going to try taking only 5mg vs. 25mg with 45mg of prednisone and hopefully the side effects doesn't get worst. We truly had high hopes for this but now we're scared to even take the lower dose. His oncologist isn't familiar with POEMS but because of the neuropathy she doesn't want him to take it. She left it up to us to decide because the Standford oncologist that we saw for a second opinion uses it for his patients that have POEMS. I know everyone's body is different so it's sooooo hard to decide. Any thoughts anyone?????