Hi Madelon, I also have secondary Myelofibrosis. I am 56 years old and before my blood disorder turned into Myelofibrosis I had never heared of this disease. Could you explain why you can not have a stem cell transplantation? I was told that I have either 4,7,and if I am lucky 10 years.My liver and spleen are also greatly enlarged. Hope to hear from you, Melanie