This is my first time in here and i am so glad to find a place that i can talk to people.
My husband was diagnosed with Myelofibrosis seven weeks ago after a bone marrow test, he had been feeling tired and out of breath, doc did some blood tests and the result of these meant he had to go to hospital.
The same day the bone marrow test was done he was told he had to stay in because he was at risk, over the next few days he was given four units of blood.
Then we went back three weeks later and was told he was to have another 3 units that time he was a day patient in from 8-30 am till 6pm. back again two weeks later and he needed blood again but he now has a high iron content,so they are going to wait another two weeks, but if he gets very tired then we have to go back to hospital quicker.
i'm sorry for going on but like everyone in here all the information i can get is off the internet, but meeting you all in here makes me feel that joe and i are not alone