I know what you mean about the blank looks. And so many say, "You look well." I was diagnosed Aug 2001 and have been looking for another person with this in my state (Maine) for four years. None so far! I've been attending a general cancer support group and a Leukemia, Lymphoma, Myeloma Support group. They have been helpful but it would still be good to talk face to face with someone that it would not require a complete medical dictionery explanation for them to understand.
Blessings,
Dayxday