Hi Cheryla,
My mother has it too, but she's 88 yrs old and has pretty much enjoyed a long life. She has received 2 units of blood twice, a year apart. It took about 11 months for it to start "wearing off". I'm finding this board very complicated. I asked a question and I guess nobody answered because I can't find an answer. Has your mom had any swelling of joints with this? My mom's elbow just swelled and is painful, and i can't find out whether it's part of the disease. She also has Parkinsons, and chf, so it's REALLY HARD to get her to the dr.s office! God bless u and your mom, I hope she can remain comfortable for a long time. Maureen