Hi Melanie and whoever else might read this post. I celebrated my 64th birthday on the 26th of March with all my children, their partners and some of my grandchildren and I must say it was absolutely amazing.
I'm sorry I haven't posted for so long but for a long time I was battling depression and fatigue and I frankly didn't think I would ever get out of the fog I was in. However, here I am (STILL). My doctors are amazed that I'm still around, and so far I have avoided the dreaded blood transfusions. I am anaemic and my platelets are pretty low. My LDH levels are very high so I guess my poor body is fighting very hard. I am now off most medication except for pain killers. For that, they have put me on 50mg morphine in capsule form twice daily and also Panadol which does help a lot with the bones.
My children are a lot more accepting of my condition now. It isn't any easier really but we tell each other "I love you" a LOT! I am also always emphasising how special they are and how proud I am of them and have formed an amazing bond with my grandkids. I live each minute of each day to the fullest and do whatever I can whenever I can. Life is to be lived and I consider mine a gift. Please keep smiling. It is easy to fall into a depressed mood, but that really doesn't do anyone any good. I shall keep up with the message board more regularly from now on. Take care
Madelon