This is my first time ever taking part in this kind of on line community.
That must be because i feel isolated and alientaed as what my husband has been diagnosed with is fairly un common in the world that i inhabit, but here it is like tumors galore!
My husband is a 48 yr old previously fit and well man with no history of illness at all. We have a toddler who is not yet 2 yrs old. I am a doctor ( psychiatrist)
On 2/11/07 he presented with a seizure. Our lives have never been the same since.
He has a grade 4 GBM and has been given 12-18 months to live.
He has commenced the chemo/radio therapy. It will be for 6 wks and then some time after they will scan himto see if he has responded.
His tumour is in the left parieto/occipito region, close to speech/memory and peripheral vision. They did not remove any of it and he is simply having treatment to delay the inevitable.
We have been away for 9 days to france ( travel insurance almost impossible to get but managed at last minute) but really can anyone tell me what they have learnt through hind sight - is this going to hospital to buy extra time worth it?
should we not instaed accept his destiny and go and spend his last days where he wants to, doing what he likes? not feeling tired/sick and expectant and hopeful in a situation where really there is no hope?
We have only had 6 wks to get used to this, can anyone hold my hand in this and give me some real information?
He seems fine apart from some short term memory problems and word finding difficulties. We dont know whether it is the tumor or the shock. i expect it will be the former.
Just how can on'e life go from normal to dying in the space of the time it takes to have a fit?
How long was the grade 4 tumor there for?
Tahira