Hello All,
Desperately searching for others like our Jodi.
My beloved sister, Jodi, passed away after a long fight with Primary Peritineal Cancer in January of 06. She was only 30. She was treated as an Ovarian cancer patient would be, like I've heard so many with PPC are.
What's unique with her, or our story, is that she survived Neuroblastoma as a baby back in '75. Her cancer came back, found in her pelvic floor actually, in 2000.
We are trying desperately to find others that came from surviving neuroblastoma as children but have been hit with cancer again in their late 20's. Surviving that cancer was rare to begin with but know there are a few out there, somewhere.
We have a very long story we want to share with the world about her & her care but want to start with trying to find others out there like her/us. We were pretty much told she was one in a milliion, sort of speak. They think it all stemmed from when she was a baby, just laid dormant until she was 25.
Feel very alone in this world without her & want badly to even help one other woman that feels alone from having had childhood cancer(really neuroblastoma).
Due to the HIPPA law, are research at hospitals for names is impossible.
Thank you for your time. For a survivor of Ovarian, baldisbeautiful.com is an amazing site. We just need a site for those that have LOST and need answers about others out there.
-jodis's sis