Hi Patient's Daughter! You must have had a great holiday for your message sounds so 'chirpy' and happy!! I have gone to the website and it really is very good - Robert Miller sounds very clever and he certainly gives a great positive approach to lymphoma! I am looking forward to receiving his free article on survival -- that will determine whether or not I go the full way and pay the $35 to be a member of the site. I have a young friend with Hodgkins lymphoma and I have yet to learn the differences between this and the NON Hod. type -- or any other type for that matter, and then the difference between these and what I have, multiple myeloma. All I'm really sure of is that they are all blood cancers, however where I've always been told that mine is 'terminal' the prognosis according to Robert Miller seems to be more of a 'chronic' illness and that people live for many years after it is diagnosed. I do hope for your sake, that this is true! Especially as they have been able to start treatment so quickly.
As for me...well Christmas was fantastic and proved to me that life is certainly worth fighting for, even in those bleak moments when one has been vomiting for 72 hours and wonders if all this is really worth it.... the answer is YES it is worth fighting for and hanging in there through all the pain and bad stuff!! There IS light at the end of the tunnel, no matter how bad the journey can get, so keep on keeping on and make sure that you enjoy every good moment to its fullest -- the condition is so fragile that it can change in an instant!! I'm gradually learning how to 'pace' myself because I'm learning - the hard way - that if I don't rest for at least 6-8 hours a day then I'll become ill very quickly and that the medicines are now taking longer and longer to do their stuff until one day when the medicines won't work at all. Thats the fact, so I've just got to learn about 'pace'!!
My best wishes to you on this learning journey -- I'm sure that before too long, you will know more about follicular lymphoma than the majority of doctors in the world. In fact when I was first diagnosed my doctor said as I left his office "I'm sure that you will know more about myeloma than most doctors by the time you come back" -- and two weeks later I did!! He had never seen a case before he met me, and now we work together -- fortunately with the support of a fantastic oncologist -- to keep me functioning!! Take good care and please keep in touch!! Cath