On 12/20/2007
Rauni wrote:
Researching Fallopian Tube Cancer
Hi Beth:
I have been where youve been and know how much stress you must be under.
I was diagnosed with Fallopian Tube Cancer AFTER my hysterectomy which was done because I had passed menopause but I bled from June to December 2006. I had a biopsy and a D&C and ultrasounds. The ONLY thing detected was severe pre=cancerous cells in my uterus.
When I began bleeding there was a salty, ammoniac smell and honey coloured liquid coming from me. I do not know if this is symptomatic of FTC but I read somewhere that the honey coloured liquid was.
I was lucky that the tumour in my fallopian tube had not penetrated the tube. It was discovered when, after the op, my parts were biopsied but it was Grade 3 so I was very lucky it was found.. FTC was treated by my doctors as Ovarian Cancer because I was told its so rare. My C125 was 5 at its highest
I was very scared of the operation because I am phobic about needles but obviously very glad that I listened to my instincts and did the operation. I cannot tell you what to do. My heartfelt prayers for the best outcome.
Im glad you reached out for support. I found that very hard to do but very rewarding. There is a website for women who are about to have or have had hysterectomies. Hystersisters. The information, support and checkpoints they gave me were invaluable as has been this website Compass. Both of them have stopped me worrying about things I couldnt get answers for from my doctors.
I only found out recently that drs look at more than the C125 in your blood test as I was told at my last check up that I didnt have any more stars against my other tests.
With very best wishes
Rauni
Rauni:
Thank you for your feedback. It is good to hear from someone who actually has been diagnosed with FTC and what you have experienced.
I had read about that discharge you mentioned that went with your bleeding and also have read about a clear watery discharge that is sometimes a sign of FTC. My bleeding seems to be more menstrual and since I am pre-menopausal, it could be from the fibroids. The good news is that since my D&C and the re-establishment of my period, that inter period bleeding seems to have stopped. I am watching things closely.
I also discovered Hyster Sisters when I first started researching this and have found it helpful to both receive feedback and share my insights from the process I have gone through. I also have a sister whom is a doctor and has also given me perspective on my results.
I wish you continued good health and will keep things updated as I continue with my process.
Blessings to you!
Beth