On 12/18/2007
Jaguarbeth wrote:
Hello:
I found this site and see a number of women on the message board who are dealing with fallopian tube cancer. I recently had laproscopic surgery to check out some masses that were found on an ultrasound and have been told I have fibroids and endometriosis and a hydrosalphinx (water in the fallopian tube). I had one CA 125 test that was 41, and was told it is only slightly elevated by one doctor and a concern by another.
The main focus now is on the tube and whether there may be more going on in that area than just fluid. The doctors want to rule out cancer in the tube which of course, will require open abdominal surgery and complete hysterectomy has been recommended.
A year ago, I was really not feeling well with intestinal problems and a CT scan was done, but nothing was reported at that time. A year later, another CT scan was done with the recent findings and apparently there was something going on with the tube, just did not make it on to that original report (which of course, has me upset!)
I am interested to know what other women have experienced with their symptoms before they were diagnosed? I had the intestinal problems last year which are better now and more recently, a bit of spotting in between periods as well as the fluid detected in the tube. Any information you could share on what you experienced before your diagnosis would help me immensely. I am trying to make an informed decision given the major surgery being suggested!
Beth
Beth:
I was diagnosed w/ fallopian tube cancer in June, stage 3C. I had no, repeat no, prior physical symptoms. Last fall I had a pelvic ultrasound to investigate the left ovary (Dr thought it "felt different" during pelvc exam.) Left ovary was fine but the ultrasound raised a question about the uterus. I had a D&C, lot of fluid but all tests negative for CA. This spring I had a slight swelling in right groin, investigation of that in May revealed fallopian tube cancer on the RIGHT side that had come through the inguinal canal and presented externally where I could find it. So why am I telling you all this--because I had a boatload of tests that showed nothing, all false reassurance. Your situation sounds like--IF it is cancer--it might still be contained within the tube. Go after it immediately, with a hysterectomy. You will either find out it is not cancer, or you will catch it earlier than I did when your treatment options are simpler and more likely to be successful. The complete hysterectomy (removal of ovaries, tubes & uterus plus omentum) will give you about two uncomfortable weeks followed by another four weeks of steady recovery, feeling more tired than usual, etc. Do it--now. Don't wait around. Carol