Dear All,
Denys was discharged from the hospital on Wednesday. Test results show the following: bone scan unremarkable; MRI showed
new myeloma sites on her legs (Both Tibias', Groin and a the Myeloma has formed a plasmacytosis in her Pelvis. It has already grown pass 7 centimeters already. Radiation on the mass in her pelvis has begun along with her legs and groin on an outpatient basis and chemo has stopped while she is getting radiation. She has 5 radiation treatments scheduled which is condensed from 15 treatments because she cannot
be off chemo too long. The radiation makes her very tired. She also has a mass on her back about the size of an egg this will be biopsied and removed on an outpatient basis during the next two weeks. Denys prays it isn't Lymphoma. When Denys resumes the Velcade later this week she will be put on Doxil along with the Velcade.
Every day is different for my sister Denys emotionally/psychologically. Sometimes she is very cogent, but she often hallucinates and
has trouble making sense, and sometimes she is very depressed. She is on high doses of oxycotton which explains some of this but no morphine drip at home.. She says now she has Radiation Brain very burnt out from all this medication and treatment.
Needless to say Denys nor the rest of my family are not at all into the holiday season this year. This is also really doing a number on my parents as they are both 78yrs old nearing 79. Denys is the first born out of six of us. We are all trying to remain strong but, it is very hard to watch you child or sister having to live with this horrible cancer. My sister is very strong and refuses to give up. I love her with all my heart, and miss her sooo much.
Wishing you all a very Merry Christmas and a very Happy and Healthy New Year!
Love, Susan