Hi,
I'm glad to hear about the sister and husband who have done well since initial bad reactions to Torisel. As a preventative to allergic reactions and rashes that Torisel can cause Benadryl drip is used first. Except I was driving home "under the influence" so I refused the Bennie the last two infusions and did much better. No grogginess over the weekend as before.
But the edema (water retention) is so bad after one month that I can't get into any shoes. Diuretics by the handful haven't helped yet and all my muscles and joints hurt. Any suggestions?
For those who had bad side effects with Nexavar I learned how to deal with the hand/foot blisters. I lanced and drained them and bandaged them with burn or antibiotic ointments and walking was easy after that. But after 8 months Nexavar quit working. So there goes my new found energy and independence.
My cancer was discovered by accident in 2004 after it had about two years to grow. Now I have numerous tiny tumors covering my lungs and a few large ones. I've done Avastin, Interferon, Sutent and Nexavar. I'm 57 and work a 40 hour week and try to spend time with my grandkids. I won't let this win. If I can help in any way let me know.
Sharon