On 1/4/2008
copenhagen44 wrote:
I recently had a radical cystectomy for bladder cancer, and I am now cancer-free. But recovery has been slow, especially with regard to my small intestine (of which 24 inches were used to create my neo-bladder). After two months I am still having a lot of trouble with digestion and have an inordinate amount of gas and bloating which often results in several agonising trips to the toilet within a couple hours, including painful diarrhea.
My doctor has prescribed Questran (possibly called something different over there), but it's hard to find and I'm still waiting for the pharmacy to get a supply in.
Anybody have any answers? I try to keep a relatively acid-free diet (no citrus juices, coffee or artificial drinks) and eat healthy. Any additional info would be great.
I would also just like to add that, while I sympathize with those people whose pets have cancer, it's a shame that so much of this website's content is taken up by those people. You can always get another pet. Replacing a spouse or family member is impossible. I've had an extremely hard time finding information here about my problem and would appreciate some valid help for human beings.
I too find it odd that people have posted a lot about pets on this web site?
I also was finding it hard to find information on bladder cancer and answers to questions that bladder cancer patients could only know.I did find a very helpful web site called blcwebcafe.org (bladder cancer cafe) this web site is full of people going through every type of bladder cancer and many have had a neo bladder built. I have have had half my bladder removed and doctors wanted to give me a second operation to take it all out and give me a neo bladder BUT! things didn't work out when they opened they seen the cancer had spread and left the bladder in hopes chemo would work. I have been on chemo since march 07 and they finally found a drug that is keeping me stable:)
I really feel that you will find alot of help on this site so please check it out! blcwebcafe.org
dasiy bear