On 1/11/2008
Bayshore wrote:
Well anyway it turned out that the stem cell transplant didn't work either. Believe it or not but the transplant actually doubled her Myeloma. Then UMAS started her on Velcade. We were up to our 4th cycle in Little Rock and my sister returned home to continue that was on October 31st. of 2007.
My problem is that he condensed 3 weeks of radiation into 5 days because of her aggressive form of MM. Well it is a month and a half now and still no chemo. My sister is getting worse and worse and now is in so much pain in her legs and feet she couldn't even travel back to Little Rock if she wanted to.
They are supposed to be starting her on Vel/Doxil on Monday. I feel that the Velcade didn't work either because like I said the Myeloma moved into the bone in her legs, and she is also getting a few more tumors/ masses. She told me she found a small one now in her neck, and one small one in her leg. What if this Vel/Doxil fails. I really need to hear from someone who has failed previous attempts like Denys, and has already taken Revilimid. I think the Velcade should have been tried before the Revilimid.
God Bless
P.S< I also question can the Dr. give Revilimid to my sister again along with the Vel/Dex combination since she took it alone and it worked up to 90%.???t. My sister is not ready to die and is very scared.
Good Evening;
Believe it or not but the transplant actually doubled her Myeloma.
I don't understand how this could happen.How soon after the SCT did this occur? Did the Drs. offer any explanation as to why?
Well it is a month and a half now and still no chemo.
Any explanation from the Drs. when they plan to resume if at all?
They are supposed to be starting her on Vel/Doxil on Monday.
My understanding is that this combination is the next step after Vel/Dex/Rev. I believe on this site there has been comments made by patients who have been on either Vel/Doxil or Doxil alone. You will have to check past pages but I do recall reading them.
I also question can the Dr. give Revilimid to my sister again along with the Vel/Dex combination since she took it alone and it worked up to 90%.???
It is my understanding that that is what makes these newer drugs so popular: Their side effects can be reversed by their discontinuance. And they appear to work well together. Also, given in lower doses they can be used as maintenance therapy. But, this is a question you should be asking your Dr. And considering what you have presented here, it should be the first question on Monday morning!
You are welcome to copy my numbers and present them to your Dr. so they may revise a treatment plan if possible.
Again, stay strong and informed. You will be in my thoughts.
Take care;
Kevin