On 1/16/2008
K. C. wrote:
Good Evening Susan;
Did you and your sister make your scheduled Monday meeting? If so, how did it turn out? Were any of your concerns addressed? What is the treatment plan?
Take care;
Kevin
Hi Kevin,
She started the Velcade again on Monday. Today (Thursday) she is to begin the Doxil. I ready that this "Cocktail" is only for patients who haven't ever recieved the Velcade, as you know Denys was on it by itself prior to her setback. Denys isn't doing well at all. She has more lumps coming out on her stomach and neck. She has been very constipated and in so much stomach pain for a about a week now. Today she was going to get her colon cleansed. The hospital was just waitng for an okay from the insurance company, I hope they got it, this can be very toxic to her system and cause her an infection and she doesn't need that now.. I really don't know anything more right now. My parents are still down with my sister in Tampa and don't seem very optimistic that Denys will win her battle against the beast of MM. She has lost allot of weight day and night she is moaning from the extreme bone pain she has.
I am hoping to fly down sometime real soon. That is if my sister wants visitors. I would go either in the middle of next week or towards the end. I am still hopeful that the Doxil works for her. The Dr. told my sister and mom that is this fails there is nothing more he can do? This is what I was told by my mom. Needless to say I am very depressed over the way things are going for my sister. She hasn't had a break from the pain since her diagnosis in August of 06.
I will keep you informed.
Thanks for caring
Susan