I sent you a response on the private board, but since I am new to this site, I am not sure if you received that response. My husband has RS and is being treated in Miami at the Sylvester Cancer Center. There are few doctors who are familiar with this disease, so you have to research it. Where are you located? It is possible to removed the tumor unless it is involved with a vital organ. Five years ago, my husband had a large sarcoma removed. It came back last year, but is inoperable because it has grown around his renal artery and he only has one kidney. His surgery was last Feb. and he has done very well. He has been treated with a chemo (pill form) that is sometimes helpful in keeping down the size of the tumor, or even shrinking it. This addresses a "quality of life" issue. I hope you can find a cancer center where there is a sarcoma specialist. If i can give you any help, let me know. Good luck.