I would suggest that you obtain a 2nd or even 3rd opinion. I am experiencing the same. I was told I have MM, had a "plasmacytoma" radiated on my rib May 07. Now the same Dr's are stating they don't know what they radiated and have changed the diagnosis to MGUS. If there are any tumors present then that is not a correct diagnosis. I have traveled 1200 miles from home to get the 3rd opinion.
I have extreme back pain (MRI shows 8 herniated disks) and the Dr's say "I don't know why you have back pain." This is coming out of the mouths of "specialists" in the hematology/oncology field. They ignore the requests for pain management, they give the test results incorrectly. What I mean by this is they tell me that the test results was negative (or inconclusive, sample not good enough etc) or that it showed nothing. When I get the results back the tests have a long list of items that need to be investigated. What I get from them is come back in 3 mos for retesting. Not acceptable.
One thing you do realize is that once a cancer diagnosis has been made it can cause you to not be able to obtain life insurance, health insurance i.e.: pre-existing condition and in some situations can prevent you from obtaining employment.
MGUS is present in everyone that is diagnosed with MM as the criteria for that diagnosis is elevated protein level in serum and urine,,. with no other symptoms.
Find another Dr and quick. This is nothing to play around with,
CK