Hello, My name is Amy and I am a 36 year old mother of two. I also have cholangiocarcinoma. My journey with this Dx began Dec. 2007. My symptoms presented as exhaustion, loss of appetite with some weight loss, swelling in my upper abdomen. I thought I had experienced a gallbladder attack which is why I first went to my PCP on Dec. 11, 2007.
Ultrasound and CT determined that I had 8 to 9 masses on my liver. The ER doctor questioned my use of birth control over the years. A biopsy of the liver was performed along with PET scan and every other blood sample you can imagine. It was determined that I had cholangiocarcinoma..cancer that started in the bile duct and yes, had spread to my liver. January 2, 2008 I had surgery to remove 80% of my liver, gallbladder (just because) and 10 surrounding lymph glands. As of 3 weeks post-op I feel great!! I am back on my feet, getting out of house each day with my only limitations being not lifting my children. I see my oncologist tomorrow to find out his plan of action. I am hoping that i will have few treatments since the majority of the cancer was removed with the 5 lb tumor! However, whatever needs to be done, I am up for the task. If your sister has not found a surgeon, let me highly recommend Dr. Robert G.C. Martin II, he is with University Surgical Associates in Louisville, KY. He has patients from as far away as California, one from France! I am nothing but optimistic and my prognosis! If I can be of any help please let me know. In the meantime a will keep you and your sister in my prayers! The Power of Prayer!!