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Primary Peritoneal Carcinoma

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momof3boys
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Subject: RE: Primary Peritoneal Carcinoma
Date: 03/15/2008
I can't believe I have been searching the web for info on this horrible disease since my mom's diagnosis in July of 2006, and finally real people. I have grown so weary of the lack of info and then just such negative medical jargon.  I just want to reach out to people affected by it at this point.  She is stage 3 as all was luckily contained in the abdomen.  Her ca125 number started at 800 and then jumped to 1800 within weeks.  She had surgery and then chemo via belly port for 6 months.  Mom was declared in 'remission" in Jan. of 2007.  But just recently she had tests done  that showed hot spots in abdomen as well as one in the mammary area.  Both are relatively small and the doctor told her no chemo for awhile.  She has been taking tamoxofin since the end of chemo and I guess that is doing the job more or less.   Her number is still rather low at 12.  She has a network of women that she keeps in touch with that also fight the disease..and has told me that she learned from them that surgery is seldom performed for a second time.  Any experience on that would be appreciated.  I'm scared to death but trying to remain positive for my mom because that is how she has approached  this from the beginning.  I have felt very alone as no one I know has ever heard of this cancer, including my own physician.  So many cancers CAN be cured these days that people don't understand how devastating this situation is. They all want to tell you how someone they know beat this or that cancer...and so on.  It's nice to hear from those in the know.  My heart goes out to all of you

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  1. Primary Peritoneal Carcinoma
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