On 2/18/2008
iraqvet08 wrote:
never heard of it. Although I just got diagnosed with this mpd. :( I am really sad at times, but know that I have to be strong. I am 24 years old. Male. Way too young for this. Would love to get a BMT, I'll try my hardest.
Great to find someone else that I can talk to about this. Doctor said I should take anagrelide. Haven't started yet. I am afraid that it will switch to myelofibrosis later. What do you think?
HI...I am a 36 year old Male with Diagnosis of ET. I have had a bone marrow biopsy which was normal (no negative issues) and have had many other tests that are also normal with no issues. Doctors have no idea what is causing my platelets to be around 750,000. I was diagnosed in July of 2007 and am only on a baby aspirin at this time as my doctor does not want me to be on Hydrea or other drugs until platelets reach 1 million (which I hope they do not). Hope this helps you since you and I are for sure in the minority population for this disease being male and younger than 60. I will have blood taken once a quarter to monitor for now....