Marginal Low Grade B Lymphoma

On 1/31/2008 Anita0823 wrote:

I was diagnosed with indolent follicular lymphoma 9/05.  At that time, it was Stage III.  My doctor recommended w/w, and not starting treatment yet.  I am never sure if that is the correct approach.  A lot of people get treatment immediately.  My lymphoma will always come back.  I have CT scans 2-3 times a year.  Sometimes my largest lymph node will increase in size and the next time will be smaller.  This is not typical of my disease.  What is a bmb?  I hope everything goes well for you.

 

 

 

On 1/24/2008 laurita wrote:

Hi, I wanted to know if anyone out there has has their splene removed and is on w/w for indolent low grade b marginal lymphoma. I am upbeat sometimes and feel real depressed others. I am having a bmb and a pet scan in April and so far am just waiting and would love to hear from anyone who has the same. I was dx in 2001. Thank you so much

Hi there..bmb is a bone marrow biopsy..I also hope all is well with you! Since my diagnosis which was in 2001 I have had one pet scan and now it's time for another. What you and I have is indolent but they are quite diffrent. Watch and wait is the right thing to do because you still have a good quality of life. You start doing something about it when it affects your quality of life. I did get a second opinion and that dr said the same thing. The big thing was that I had my spleen removed and I felt betther. I would love to hear from you to keep in touch and see how you are doing. I am 54 with 2 teenagers!!...that is enough to keep me tired!!!!   Laura