HI all,
I am in the same boat as many of you - my Dad was dx just over a year ago. Went through chemo/rad (during which my Mom passed away from emphysema) and then surgery in May. Was fine in spite of huge weight loss (from 300 to 175 lbs - clearly he had it to lose, but is now almost skeletal - he's 6'6") but started getting weird scan results just before Thanksgiving - long story short - after numerous scans with conflicting results, the last MRI decisively shows that his hip has been almost completely devoured. He's in huge pain. Having a full body ct/pet to look for more mets again on Tues. He had new lung/liver lesions on last ct which were clear on pet, but I am now terrified those will be lighting up.
I know the situation is very bleak, and I don't need anyone to tell me that - I am looking for stories of hope - and specific details of protocols people have followed to pull through such a horrible prognosis... PLEASE help us! I am still mourning the loss of my beloved Mom. Our only consolation is in knowing that if we do lose him, he will be with his soul mate again.