Hi,
I have been reading the board on primary periteal carconoma. I was diagnosed with this cancer in 4/06. I was loaded with fluid and I found no help from all drs. I went to. I had an ultrasound of my gall bladder and they saw all the tumors in there. I had them attached to everything and then they were floating too. I talked to the radiologist who found this and he said the tumors take from your body and blood source and the tumors do not have a skin to hold all this fluid in so it weeps and makes you look like your pregant. I had a lot of fluid removed before my debulking surgery. You need a cancer center who does this type of surgery. Not anyone can do this and do a good job. I had my omentum removed and anything else I could live without. God was taking very good care of me because they did not have to resection my intestines. A month after surgery I was given chemo in a regular port with sysplat and also IP chemo. That is belly chemo. They dump the chemo in and then have you go from side to side every fifteen minutes for 2 hours every time you have chemo. I did this for six sessions. At the end I was not in too good of shape, but I eventually got my strenth back. I started out with a CA 125 of about a 1000 and now it is down to a minus 2. I am doing very well. I started in a stage 3 with a 30% chance of survival. I am now in a 50% chance it will not come back. I am at 1 yr. and 3 mo. When I reach two years my percentages increase. My Dr. told me 2 people in a million get this cancer. They have nothing to treat it with, but because it is so much like ovarian they can treat it that way and hope for the best. Belly chemo is not very good either because there are so many people who can just not do it. I had people all over the world praying for me. I believe, good support, prayers, a positive attitude , and God to help you get through this. Harmless