Hi,
It has been some months since I was here. Much has been happening to me and in my life. In 2003, I was having so much trouble with nerves not working properly, my neurologist had the 24 hr test done, and diagnosed me with mgus. Since then, I have seen the oncologist/hematologist every year after a beginning of twice in the first year. My numbers increase by 10 every year, but according to him, I am still at a very low ...1-3% chance of developing cancer.
At first, there was NOTHING on the internet about mgus. I searched everyday and emailed doctors, etc. trying to find out exactly what I was dealing with as the first time I saw the doctor, he didn't tell me. Just was short of time and explanation, telling me not to worry.
Recently, I have been looking up other things as I also have Lupus and fibromyalgia, hemangioma, and essential tremors. During those searches, I have discovered that any who are recently diagnosed have so much more to find out what they might face....Might is the key word.
One thing: I have bleeding in my eyes that several eye specialists have not been able to diagnose. I thought it might have to do with the thickening of my blood due to the mgus. Last week, I was on a web site and found out that the thickening of the blood in mgus can cause bleeding in the eyes and elswhere.
I also found out that MM is not the only cancer that can have a mgus as a precursor, but MM is the main one that comes. IF IT COMES.
The main thing is: there are many cases of mgus that never develop into cancer. And now at least, there is more information to find than just a few years ago. With more research into mgus, perhaps there will be a way to set more minds at rest and even fewer that develop into cancer.
I was afraid. I went to the oncologist by myself and waited in the waiting room for more than 3 hours as he ran behind, knowing that oncologist/hematologists treat cancers of the blood. The wait was terrible as was what I found out in my searches that first year.
But I have learned in these 5 years that it is possible not to think about it every day, not to consider it so much as a time bomb, but an un-set, un-timed, bomb material. I hope any out there who read this will take it as a bit of hope that you too can learn to live with it, as that may be exactly what you do. Which is great.