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Whipple Or Not?

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joytothe world
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Subject: RE: Whipple or Not?
Date: 03/28/2008

 

On 2/13/2008 happytobehere wrote:

Today is 8 months after my Whipple. I had Ampullary carcinoma of the Ampulla of Vader. The Whipple procedure was successful in removing the tumor, but also took 1/3 of the stomach and 1/3 of the pancreas, duodenum, gall bladder, etc. I lost around 20 pounds from the surgery and reduced appetite from the stomach reduction.

I am 51 years old, male, and had never been in the hospital or even had an IV before this procedure. The hospital stay was 11 days total (8 days post op) and it was amazing the atrophy that took place during this time. My stamina was almost non-existent at first, but gradually got better and better. I never had any dietary restrictions and still do not, but there are certain foods that seem to cause problems. For me, milk, onions, shellfish to name a few. The problems are not that bad to worry about avoiding these foods, just now I know there may be some reaction. I used to take Aciphex for heartburn, but now I take nothing except Centrum Silver vitamins. No other drugs whatsoever and my blood work is perfect, cholesterol is 150, just bilirubin is high.

I am lucky to have never needed Chemo or radiation mainly because they caught this early (4 cm) when it presented itself after I showed signs of jaundice. I had a few days with unknown fevers, but they never found anything until the jaundice. I am lucky the attending was demanding of the tests as I thought it was just hepatitis from traveling. I am fortunate to be able to tell a positive story, but also encourage you that the key to recovery is determination, good spirirts, and a sense of humor. Be patient with the recovery and do not expect things to change overnight. I did get 15 rounds of golf in before winter and found I have a draw now, but less distance. The stomach muscles will take a long time to heal and you always know the scar is there, but looking at the alternatives, this is not so bad. There are definitely some good stories out here and I hope that mine will help anyone anxious about their future.

We have a similar case except that I had my whipple when I was 40, I'm female and survivor for 16 years now in fact going 17 this coming April.

I had dietary problems after few weeks but this is normal. I ate steam rice and fat free food, hot soup, but rice perfectly suited my appetite. Enjoy your life and I wish you long life to live like me. By the way, I am diebetic type 2.

 

 

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