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Torisel

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Subject: RE: Torisel
Date: 02/11/2008
DOCTORS NEED TO LEARN HOW TO TALK TO SOMEONE WHO HAS CANCER, i HAVE HAD TO SEE ABOUT 10 DIFFERENT DOCTORS IN 2.5 YRS, and the surgeon who removed my L kidney was the only one who I talked to, that left you with the feeling he had told you everything possable...Some were better then others, but you had to pry info out of the other ones...My oncol Doctors are the worst, and top notch doctors at that,they never say shit, and some act pissed when you grill them, which I reserve the right to do, after all its my life we  are trying to save. I also read absolutly everything that I can understand ,about treating RCC, I catch these guys all the time not knowing the latest treatments available for RCC, I belive I have lasted at least a year longer then I would have  otherwise (really),then if I just took there word about everything conserning  my treatments, were talking about x-rays ,cat scan,bone scans,radiation treatments, and all the new kinase inhibitors I would not have had, if I just let it be up to them what treatments I got,,,This is the US goverment (VA), we are talking about here...which I conside good because you are not tied to one doctor all the time, so you learn more, thats for sure...I am going to find out about my latest bone scan today befor I deside if I want to go throuth all those nasty side effects with torisil, just to live another few months (and a big maybe if it works at all) for me..This will be the 5th chemo drug I will have taken if I do go with it at all...Kind of a confusing letter don't you think, 2.5 years of treatments covers a lot of territorry that you will be going through yourself...I also have 5 different mets to deal with. All stage 4...and good luck my friend, with your treatments./...Mel from Nevada

Messages History for "Torisel"

  1. Torisel
  2. RE: Torisel
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