On 2/8/2008
Peppe wrote:
Hii my name is Peppe' I have Myelofibrosis. I was diagnosed Sept 2006. I'm doing fairly well as of now.
My reason for writing is to see if there are others out there that would like to communicate. I'm not sure how I got this, and I'd just like to compaire notes with others.
God bless you all
My Mother has it too.Over the past year she has begun to have nosebleeds lasting anywhere from 2-8 hours. She had to stop taking asprin for her leg pain because aspirin kills platelets, and the Dr said it could be the reason for the bleeding too. So she takes some thing stronger now that works very well but she still has had nosebleeds! Her platelets were ok last week and now they are too low. The Dr wants to do a bone marrow biopsy to see how the disease is progressing. I will be with her during this time and help her. I wish I could do more.