On 2/11/2008
Bayla wrote:
We've had a hard day. My sister's surgery was today and instead of a liver resectioning for a Stage I or II Klatskin tumor, we were told that there was nothing they could do for her. Despite the scans and tests which had all been so positive, they were wrong.
It seems to have started in her gall bladder and traveled upward to both bile ducts and much of her liver.
So what's next??? Anyone experience the same? Thanks for helping
Hi Bayla,
I am very sorry to hear this news about your sister. This same thing happened last year May with my husband. The liver was so badly infected, they had to take more than 75% away, plus there was a metastase near the pancreas, so the surgeons blew it off. There is not much that can be done now. The only help I can give you is the following. My husband recovered from the scar within 2 weeks, he got 2 stents to keep the bile flowing and he resumed LIVING. Yes, with capital letters. A month later he was back to work and he even plays squash again. Though we had a prediction for him to live at the most 2-3 months, this is 9 months now. He has occasional fever and takes antibiotics for this. But the quality of his life is still very good and we are living every day like a bonus.
I hope your sister will be able to do this too, I strongly believe by acting "normal" again, she can cope much longer than when she behaves like a patient. I wish you, your sister and your family a lot of strength.
Iris (the Netherlands)