Hi Jane! I have had MM for four years now, and noticed that you too are suffering from one of my main annoyances, namely the hot flushes! And you are living in England, where you are experiencing winter - so you shouldn't be having these hot flushes!! I'm in Australia - its summer - and I have these daily, sometimes 2-3 times a day. I have posted questions about this on this board and it seems to be a factor of MM, but most people feel that it is better during winter. There doesn't seem to be a way of controling this problem, just to carry a dry face washer to mop up your dripping head!
It sounds as though things are starting to move - fatigue, bone problems, etc. But don't worry about waiting a month - time is not that short! Once you have the results then decisions can be made about what form of treatment might be the best at this stage. Have you had anyone look into your bone pain/probems? I have found that the durogesic patches (Fentenal) work really well to control bone pain, just increasing until you reach a level that works for you. Pain is so individual, some people find 25mg is enough for them, others need lots more. But a lot of people a afraid to use the patches because they feel that they will be considered drug addicts, which is certainly not the case! You are in early stages and we are really fortunate that research is progressing very quickly with all sorts of new drug combinations being approved and working well -- its just a matter of finding what works best for you! While MM is still a 'terminal' illness, that doesn't necessarily mean days/weeks/months! As you can see from others who have responded - time can be calculated in years these days!! I personally believe that it won't be long before MM is considered a 'chronic' disease, much like diabetes. Hang in there - the 27th isn't so far away, then you will know what your choices really are. It doesn't pay to worry about what 'might' be, it just adds stress to an already stressful situation. Best wishes - and keep cheerful!! Cath