Hi,
My husband is also going through treatment for mucosal melanoma. He was diagnosed in june of 06. He had two surgerys to remove melanoma from his sinus and then had 5 radical radiation treatments. The monster staayed dormant until November o7 when it was found in his lymph nodes. Again surgery to remove nodes and he just finished 30 doses of radiation.
They have not offered him any chemo as they say there isn't any proven to help.
He is being treated at Dana Farber and at rhode Island Hosp. Cancer center.
The main thing we have found is to keep up on scans! We found his recurrence quite by accident! He was scheduled for a pet scan in Jan. 08 but I had seen a news report about knee pain may be a sign of lung cancer. My husband had been complaining of knee pain for over a week so I asked his Doctor's to move up the scan which ultimatly found the cancer was back.
I know the frustration you must be going through as there is so little info out there.
I have been researching "natural" remedies and have my husband on a few different things.
My prayers are with you and if you woluld like any info please contact me
Susan