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Myelofibrosis--I Need Some Help Please

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JuJusdaughter
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Subject: RE: Myelofibrosis--I need some help please
Date: 04/14/2008

Update on my Mom, who is doing fine now but WHAT A WEEK!

This past week was bad. I have never seen her so sick and frail. She had a bleed starting last Sunday evening. It stopped but started back on Monday afternoon and lasted until about 2am Tuesday. We all headed to her Dr.s appt. Tuesday and bless her, the bleed started back up in the waiting room :(  

I  tried to help hold her ice pack and switch out gauze as fast as I could.  She was shaken up by the whole thing. I stayed the night with her and we checked into outpatient Wednesday morning for her transfusions. Everything went fine until she had a reaction to the platelets. After benadryl and steroids she fell asleep. The color was back in her face and it was the first time I had really seen her looking peaceful all week. It just brought quiet tears of relief to my eyes. Once I knew my step father was on the way, I left my Aunt and Mom to go home for some rest. I couldn't rest though. When I did sleep I had terrible nightmares and just woke up sobbing. I guess I just held it all in for three days and the flood gates finally opened.  That and catching up on sleep was all I needed to get back to normal.

She will continue to do transfusions unless they begin to fail. If they ever do, her Dr. recommended five day chemo with a week off and repeat until five rounds are completed. We all still have a lot of faith that the transfusions will last and hearing about people here that have gone years and years with transfusions still helping, gives me so much HOPE. :)

Still keeping everyone included in my prayers, I hope everyone is doing well and staying strong!

Andrea 

Messages History for "Myelofibrosis--I Need Some Help Please"

  1. Myelofibrosis--I need some help please
  2. RE: Myelofibrosis--I need some help please
  3. RE: Myelofibrosis--I need some help please
  4. RE: Myelofibrosis--I need some help please
  5. RE: Myelofibrosis--I need some help please
  6. RE: Myelofibrosis--I need some help please
  7. RE: Myelofibrosis--I need some help please
  8. RE: Myelofibrosis--I need some help please
  9. RE: Myelofibrosis--I need some help please
  10. RE: Myelofibrosis--I need some help please
  11. RE: Myelofibrosis--I need some help please
  12. RE: Myelofibrosis--I need some help please
  13. RE: Myelofibrosis--I need some help please
  14. RE: Myelofibrosis--I need some help please
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