I was diagnosed Cll last march. I had made several trips to my primary physician for the past two years. It was always pain somewhere, or something hurting or aching. He would run test and the test would always come back with nothing. My doctor said that I was getting older and my body was changing. My husband and my doctor(s) thought I was crazy, because all I did was complain. I finally went back to my doctor and demanded he find out what was wrong with me, and that I wasnt going to leave him alone until he did!! This got his attention, and he sat right there and we started going back over my file. Finally I'd got his attention. We were in his office for an hour talking about my aches and pains and reviewing my file. He drew some blood and that got the ball started. Of course my white blood count was high(er). As we looked back over my file.. it had been getting higher and higher for the past 2.5 - 3 yrs. We drew more blood, further test. (he now had something to look for) and then sent me to an oncologist. Of course they took blood and more blood and then finally after 1mo from my showdown with my primary doctor I was diagnosed.
Your right.. they will not give a "yes" answer until they are 150% sure. In the meantime your driving yourself nuts. All over the internet, trying to find information all while in disbelief.
Currently I'm in the watch-n-wait stage.. I've changed my diet. I eat healtheir, take viatmins and mineral supplients. I feel better today than I did a year ago. (Although I can feel my body making changes) I've armed myself with as much knowledge as I can about CLL. Knowledge is power!!
I cant tell you what to do, but if I may suggest.. Get a second opinion. Find yourself another doctor and keep going until your satisifed. This is your body your health. Its precious, dont let anybody play with it.