Average Rating:Rating
Rate this Discussion: rate!

How Did You Get Diagnosed?

Expand all Messages
Subject: RE: How did you get diagnosed?
Date: 02/21/2008

You have my complete empathy at having to watch and wait.   I have been seeing my hematologist/oncologist for about 5 years now.  I was sent to him because I was anemic, RBC, HCT, PLT and WBC and I had lost a lot of weight for no reason. My percent of lymphocytes has been fluctuating.  He seems to be watching for the WBCs to increase and the lymphocytes to increase.  I guess they are supposed to be less than the neutrophils or granulocytes.  His first guess was Lymphoma, then Hairy Cell Leukemia then he said he suspects something will show up eventually having to do with my B cells.  I have had 2 bone marrow biopsies one from hip and the other from my sternum when I had my heart valve repaired last year. Because I had severe sinus and lung infections that wouldn't go away my doc discovered that I have hypogammaglobulinemia and I am receiving monthly IVIG treatments.  I haven't had an infection since I started, but I do have candida on my tongue and in my throat. My doc told me I would be with him for a long time.  He seems to really care about me and wants me to have a success story. I even have his personal cell phone number! I see him or his PA between my IV treatments and everytime I'm there I get new blood tests.  I am always very nervous at these appointments.  My BP is always higher then than any other time!

All I can say to you is hang in there and find a doctor you are really comfortable with.  Trust yourself to know your own body.

 

Mari 

 

Messages History for "How Did You Get Diagnosed?"

  1. How did you get diagnosed?
  2. RE: How did you get diagnosed?
  3. RE: How did you get diagnosed?
  4. RE: How did you get diagnosed?
  5. RE: How did you get diagnosed?
  6. RE: How did you get diagnosed?
  7. RE: How did you get diagnosed?
  8. RE: How did you get diagnosed?
  9. RE: How did you get diagnosed?
  10. RE: How did you get diagnosed?
  11. RE: How did you get diagnosed?
  12. RE: How did you get diagnosed?
  13. RE: How did you get diagnosed?
Expand all Messages
close




Sending...
Required Fields All fields are required.
close
User is No longer Ignored
Show messages from this user
close
Report Abuse
Anonymous Note to Administrator:

Reporting
Latest Messages Show More
RE: post whipple malabsor Posted by Bellamama23 on 12/02 10:45:44 PM
RE: Feedback on Cancer Tr Posted by lisaann on 12/02 10:43:11 PM
RE: HDR Brachytherapy? Posted by Momlynn on 12/02 10:38:41 PM
RE: Caregiver/Support Posted by Keephoping on 12/02 10:17:59 PM
RE: Yucky MRI Posted by rabelcheth on 12/02 09:54:48 PM
no more GBM! Posted by Mikesister on 12/02 09:21:13 PM
RE: It was one year ago t Posted by bonniltc on 12/02 09:09:15 PM
RE: It was one year ago t Posted by MarkB on 12/02 08:47:43 PM
RE: RAI/Thyrogen shots Posted by tink2002 on 12/02 08:45:40 PM
RE: RAI/Thyrogen shots Posted by tink2002 on 12/02 08:42:23 PM
RE: Just started Gemzar a Posted by MarkB on 12/02 08:35:48 PM
Colon Cancer - 3D Medical Animation