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Kidney Stone - Special Diets??

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Subject: RE: Kidney Stone - special diets??
Date: 03/04/2008

Hi Craig!  I had written half a response and then hit a 'wrong' key and lost the lot - I really hate it when that happens!! I was saying that its been a week since they zapped the stones - yep, apparently there were 3, one big one, one middle size and a small one.  I'm suppose to have a CT scan in three weeks to see if there are any stones left, but as they only saw one in the first place, I'm not too hopeful.  This has been extremely painful, so much so that even breathing has been difficult, let alone coughing, vomiting, or sneezing!  I am on high strength antibiotics and I do believe that these are working for my temp has dropped from 39 to 37.5 most of the time.  I always understood that the kidneys might herald the nearness of the time of the end, but I had thought that it meant that I would need to go on dialysis.  That being said, I thought I had a long way to go, but with all of this happening my prognosis may not be right.  Oh well, live and learn.  If it does look like I'm starting a downhill slide I do intend to write to all of you and let you know what the time of the end is looking like for me.  Its amazing just how much energy it takes to write on a laptop -  particularly when you find it difficult just to breath.  This means that a trip to the loo can take up to 15 minutes by the time I can regain my breath!  Wow, who would have thought??  Thanks for your good wishes Craig.  They mean a lot.  Hopefully this kidney experience will get better and I will just continue on my Revilimid journey -- its 19 months now and going strong!!  Take good care and I'll be in touch, Cath

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