My mom has been fighting RCC since Feb 2006, she had her left kidney out. Then it spread to right lung, was put on a Sutent trial. Was taken off that because cancer spread to lymph, right lung, left adrenal gland and right rib. Was put on RAD001 trial in July of 2007. Everything has been stable all this time with no growth except for loss of apetite. She is on an appetite stimulant, zanax, anti nausea medication and oxycodine for pain. My question is that every day about 3:00 she becomes so disorientated that she can hardly functon. She needs help to eat, go to the bathroom and she shakes and she can not remember things from one moment to the next. Then she wakes up the next morning refreshed, and can only recall certain things. Can anyone tell me if tis is normal in RCC patients of is there something else going on that we are not being told. She had a MRI and CT scan a week ago and still stable. Any information will be helpful.
Thanx Debara