Hi: My name is Lynn and my son, Robbie (aged 34) was diagnosed with Stage IV EC adenocarcinoma also with mets to the liver. Robbie was told that he would have about 3 weeks without treatment and 3-4 months WITH treatment. Robbie chose to fight the disease agressively and he had brachytherapy ( a type of radiation) which fully killed the tumour in his esophagus. He had many mets in the liver (about 62 lesions). Robbie underwent chemotherapy with Carboplatin, Epirubicin and 5FU. Carboplatin and Epirubicin were administered in the chemo outpatient unit at the Juravinski Cancer Centre every 3 weeks and the 5 FU was a 24/7 infusion which he carried around in a little pouch. Robbie went through this treatment for 16 weeks and then went on an oral drug (Capecetabine), which did not help him and then tried Docetaxel which did not help and then did trial drugs, and an hepatic artery embolization and then finally RFA before the cancer in his liver grew too big. Robbie remained at home but during the 18 months that he lived - he did many things - he camped, fished, went motor boat tubing and lived life to the fullest. Robbie only took strong pain killers about 10 days before he died. He was up and about on the morning that he passed away at age 35.
Please remember to NEVER GIVE UP HOPE. The only one who knows when our time to go is God and He is not telling any of us. My son told me to live one day at a time and I am still doing that. I would definitely ask for a second opinion rather than just going home to die. Surely they could give some chemotherapy to allow more time.
I will keep you in my prayers.
Hugs to you and your loved ones
Lynn