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Soft Tissue Sarcoma

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Subject: RE: soft tissue sarcoma
Date: 05/26/2008

i had radiation twice a day for six weeks with my first cancer then two weeks later i had surgery and that was it. 

Then a year later I found out it was in my lungs.  I started with Adriamicyne and that worked well but after i had my lifetime doseage and stopped it the cancer came back.  After that I had Ifosfamide and Mesna and I had an allergic reaction to it twice.  Then I had Doxorubicin, Taxotere, DTIC, and Gemzar.  All of them worked well for a while then it stopped working.  So after awhile I tried a procedure called PhotoDynamic Therapy that is amazing (only 4 places in the US do it though) and they were able to get 80% of the cancer but it really should have been followed by some chemo to kill the rest cause after the treatment again the cancer came back.  I have also done Radiation to my chest when I was having major pain and it helpped alot.

I am currently on Sutant and it seems to be working well.  The doctors are really excited about the way I have been feeling and lack of symptoms I am having and my lungs sound better than they have in years.  I will find out in a month when I have my scans again.  And the Sutant is great cause it is a pill I just take at home every day 28 days on and 14 days off.

I wish both of you luck and let me know if there is anything I can do to help you.

Messages History for "Soft Tissue Sarcoma"

  1. soft tissue sarcoma
  2. RE: soft tissue sarcoma
  3. RE: soft tissue sarcoma
  4. RE: soft tissue sarcoma
  5. RE: soft tissue sarcoma
  6. RE: soft tissue sarcoma
  7. RE: soft tissue sarcoma
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