Karen,
You need not feel helpless with so many other that have LMS on the www.acor.org list for LMS. If you do not have confidence in her doctors, by all means, go to a sarcoma center like MSKCC. I am a patient there for almost 13 years, stage IV. I have had many surgeries but I am still here and I am a longterm survivor. Go to www.mskcc.org, pick a doctor under sarcoma. Good luck, there is much to be done.