Dear Connie,
I am sorry I didn't read the previous messages when notified a reply came in. I am sorry for your loss. It is very hard on a caregiver. High grade is very treacherous compared to low grade LMS. I was the same age as your husband when I was diagnosed. It was uterine LMS and I had 4 recurrences and 15 tumors. I know that I have put much stress on my husband so I know how you are suffering. The pain and suffering affect both of you. Please join a bereavement support group in your area. I hear they are wonderful in getting you out of your slump. I think it would do you a lot of good. Maybe they have one on www.acor.org I think they do.
Much sympathy,
Ro