Hi Connie,
I stumbled upon your log tonight, as I am about to return home for winter break from my senior year at college. This is my first time responding to a forum, but after reading your story I wanted to share my family's with you, because your story is so similar to what we went through this summer - you are not alone in confronting this confusing, shocking, unexpecting and horrific disease.
My father passed away from liposarcoma this past July 4th. It had been only three weeks since his diagnosis. I had no idea that it was possible for a seemingly healthy person to become so weak so fast. I was shocked to see so many similarities between your husband's disease and that of my fathers. (The doctors said that his condition was very rare) He too went into the hospital for back pain (he had been doing yardwork so this seemed not unordinary) and later the doctors thought it might be gall stones. They came to move me out of school for the summer a week later(June 12th), and when we returned his pain was so severe that he checked in the ER. We found out that the gall stones were actually a tumor located in the retroperenial area. After an emergency surgery to remove intestinal blockage that the tumor was causing, he was unable to recover as the cancer had already spread (to the liver, kidneys, colon, lymph nodes) and, like your husbands, was high grade and in a late stage. Like you, I am in shock - I can't believe he's gone and it's been now five months. Sometimes I feel like I should be over that "unbelieving" stage, but after reading your message I realize that maybe this is a result of how fast this disease attacks. We're all moving day by day, and it is still a struggle. (I have two brothers ages 16 and 19, I am 21) He was such a wonderful father and friend and I miss him every day. Please know that my prayers are with you.