Connie,
I am so sorry to hear about your husband. My husband was just diagnosed with the same cancer in January 06 and just had surgery to remove the tumor that extended from the top of his kidney into his groin and into his leg. 69 staples later and losing most of his ability to walk with his right leg the Dr. says he got it all. I am still new to this and am very scared. We just got the diagnoses tonight that it is Advanced retroperitoneal sarcoma cancer centered in the groin region primarily. He is a mess. Can you please give us some advise on what to do next? We are luckily going to one of the best oncology surgeons in the United States but we feel like the rug was pulled out beneath us. He went in last Sept 05 for back pain and the neurosurgeon was hinting that he was faking the symptoms because where they supposedly found a herniated disk would not have created the weakness in his legs. They did a disketomy in Nov 05 and his symptoms got worse afterwards. It was only because a repeat MRI of the back that we found the tumor in his stomach. Should I feel secure because the dr. said he got all of it? We will be starting Chemo and Radiation therapy soon. Like you I am trying to take care of him and praying every second. I have taken an extended leave from work and my primary goal right now is taking care of him and my kids. Since the surgery he has become bed ridden because of the inability to walk but each day we work and work and he seems to be getting a little better but this totally blew him away tonight to get this diagnosis and I can say it blindsided me. Can anybody please give me some information on this type of cancer?
Thank You and God Bless,
Lori