Connie,
You need to join the leiomyosarcoma acor listserve for more information and your husband will meet others like himself.
http://listserv.acor.org/SCRIPTS/WA-ACOR.EXESUBED1=l-m-sarco
OR
www.acor.org click on support lists-leiomyosarcoma. Fill out the form and join the list. There are over 600 members now.
Also another website with much information is:
http://www.leiomyosarcoma.info/
I have been reclassified as having endometrial stromal sarcoma as of 5 years ago, but it is treated the same as LMS(short for leiomyo) when it is high grade. I have been lucky not to have had any radiation or chemo with my 3 recurrences and a total of 16 LMS/ESS tumors. I have been on aromatase inhibitors for my type of uterine sarcoma. Unfortunately, it is a breast cancer drug that works on uterine cancer and it won't help your husband. I am glad the list of sarcoma doctors was able to help you decide to get a second opinion. Best of luck. Slay the dragon!