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Retroperitoneal Sarcoma

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Caregiver
Caregiver
Rarebreedz
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Subject: Lms
Date: 07/08/2005
I'm afraid the only help that could be offered my husband was in the form of radiation. The radiation would've simply been performed in hopes of possible shrinkage for pain control:( We have declined the radiation for a couple of reasons 1)when you're living on borrowed time he wants to make every second worthwhile with his family and friends, not hospital visits that are 35 miles away for five days out of the week when there is no hope for the treatment to save or prolong his life and a minimal chance at it assisting in pain control. Our second reason is that, as I mentioned, DAVES sarcoma is literally growing outside his body as well as inside. It is a huge, raw, horrific mess that grows so fast and aggressively that it ruptured the freshly healed but still weakened 7" incision from the biopsy. The sarcoma is now visible growing out the gaping hole in his back. I try to remain optimistic and hope that if we are forced to clean and dress this awful sight that at least let it offer some pain relief by releasing some pressure. Now that you have a clearer picture of the actual wound/sarcoma itself and the weakened tissue that surrounds it, just imagine the burning side-effects of radiation and what they could do to DAVE considering his already bizarre condition? Chemo could be as bad or worse if he were to get nausea:( A mere trip to the restroom can cause uncontrollable bleeding. I had him spend the night at the hospital this past w/e. I was/am terrified that he is/was bleeding to death. They said his WBC count is out of this world and gave him some IV antibiotics and a shot of VIT. K to help coagulate his blood. I have accepted that they are limited in what can be done to help him. The erupting sarcoma is almost more than I can handle. I have to make sure there are no mirrors for my husband to read my facial expressions when cleaning and dressing it. It would scare me to death to see a sight like that normally, however when it's your best-friend, lover, husband etc... you can learn to do things that normally would've caused a person to just pass out. All of this has happened in a very short time (since 05/25/05) I am muttling thru minute by minute, hour by hour and day by day. I have no way begun to absorb a 3-6 month prognosis, let alone CANCER! My husbands background was high blood pressure and while we tediously selected and sacrificed to keep him healthy, who'd have guessed this viscious monster was digging in to write him a death sentence?:( I suppose it'll take years to even comprehend but right now I'll utilize my remaining minutes, hours and days reiterating the facts that I couldn't be more happy or love him anymore:( We have known each other our whole lives and been together the past five years. In all that time, I am 40 and he is 46, we have NEVER yet had an argument even tho anyone would tell you we are both spunky by nature. It's a love that is predicted to only last a shorttime but something so special that I'm sure many people go thru life having never been lucky enough to experience. I am so thankful and grateful for what we have and had but my selfish side that wants him here in the flesh, with me, is getting closer to a nervous breakdown as the days pass by. I truly appreciate you replying, praying, understanding but mainly listening. Sometimes it's somewhat therapeutic just to let it out. Peace to you and thanks again. May god continue to bless you and yours. Kindest Regards, Connie

Messages History for "Retroperitoneal Sarcoma"

  1. Retroperitoneal Sarcoma
  2. Retroperitoneal Sarcoma
  3. Retroperitoneal Leiomyosarcoma
  4. Leiomyosarcoma
  5. Lms List
  6. my Sister Has Lms
  7. my Sister Has Lms
  8. Retroperitoneal Sarcoma
  9. Retroperitoneal Sarcoma
  10. Lms
  11. Don't Give up
  12. Lms
  13. Retroperitaneal Sarcoma
  14. Retroperitoneal Sarcoma
  15. Leiomyosarcoma
  16. Leiomyosarcoma
  17. Leiomyosarcoma
  18. no Apology Needed
  19. no Need to Apologize
  20. my Prayers Are With You
  21. my Husband
  22. Retroperitoneal Leiomyosarcoma
  23. Retroperitoneal Sarcoma Any Information Appreciated!
  24. Lori
  25. Unsure of Anything
  26. Forgot to Answer The ?s
  27. Lori
  28. Con.'t
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