I had the cancer in a retroperitoneal mass, (leiomyosarcoma) I never had it in the uterus. Intially they thought it was ovarian cancer, and it was only when the surgeon went in did she see that it was an enity by itself.
And the run around to get someone to give a straight forward answer. They were bascially as the old doc said "putting me on the fence". That's when we went to find a doc that had experience with sarcomas
We still don't know what the protocol is if we have problems, like signs to look for.