Hi dragonfly ( I LOVE dragonflies by the way). I also have CIN III. I go back April 18th. I didn't get the hysterectomy yet. My husband wanted another baby and the doctor said we had time to have a baby if we wanted. I have made up my mind not to. I also had to wait on my new insurance because my husband switched jobs. The doctor said I had enough time so here I am waiting. I did go to one self pay check up two months before the pre-existing condition was lifted from my insurance. The doctor told his student tag-a-long that my cervix looked very atypical. He wanted to do a colposcopy that day, but said it grows slow enough, that I could wait two months. I had already had a colposcopy, and a LEEP (margins not clear, still CIN III). As soon as my insurance restrictions cleared I tried to get in. They apparently never got my medical records from my last doctor and told me to reschedule in a year!! I physically brought them my records to avoid any more problems with that. By the way, if you're not getting a good enough explanation from your doctor.. just call your clinic and ask for medical records. Tell them you want a copy and ask when you can pick them up. They have to give them to you, and I didn't even pay for the copies. It's nice to see all that the doctors notes, and with mine I could also read what the oncologist had to say to my OBGYN.
So anyway, I also have a lot of burning pain. I got what I thought was a bladder infection not too long ago... but my primary doctor called me with the lab results and he said I did have an infection, but not one that would be treated with antibiotics. (I definitely should have gotten a clearer explanation). It seemed to subside so I didn't worry about it. Now it's bad. If I sit the wrong way it hurts. I looked at it with a mirror and my vaginal walls are bleeding. I don't see any blisters like herpes(which I never had). Also the tissue in the opening looks like brains. I see what looks like polyps too. like five of them. I told my last doctor I thought the opening of my vagina was becoming rough, but he just said that a lot of women had folds and different shapes in there. But I know my body and this is not normal. It seems further back is still normal. I think that's all he probably looked at too because of that tool that keeps you open was in the way. Now I'm scared. I also have low back pain. It feels like behind that bone on my butt, not the tailbone, higher that that and deeper in. Sometimes it's really debilitating, I can't even walk on bad days. I got cortizone shots, saw a back doctor, primary doctor, chiropractor, physical therapist, OBGYN, they all have a different theory, but I fear it's something terrible. I think I just know. It all makes sense. To get to CIN III it takes like ten years. I remember after my daughter was born 9 years ago the nurse said I had really high white blood cell count. She said it was not usually a good sign, but I probably had a bladder infection. I didn't. They never said anything else about it. You can also get HPV in your mouth. I don't have any pain or symptoms, except that my tonsils started to shrivel and get holes. Now you can barely see them. Within the last year they just shriveled up!. I have heard the tonsils have something to do with your immune system too...so I don't know. Should I mention that to my doctor?? It's kind of embarrassing.
This could all be related to the HPV, even the pain I'm having in my butt. I was told by my last OBGYN that it couldn't be related, but what if it's deeper that they know, and what if ther's a big growth in there???