Hi Patti,
My Mom was recently diagnosed with CUP. The tumor in her lymph node was found when she had problems with pain in her lower stomach right hand side into her back. They thought she had a kidney stone but when that was not being resolved they explored further and gave her a pet scan and showed a hot spot near her kidney area int he lymph node. Confirmed after biopsy that it is adenocarcinomo. We were able to get my mother into Moffitt for a 2nd opinion and it was confirmed CUP. She is now on chemo for 6 cycles (gemzar & Taxol) She has lost alot of weight and seems to have discomfort in her lower abdomen area now. Pet Scan scheduled this Wednesday to see if there is any additional activity. After her six cycle chemo if there is no change or the cancer shows progression, she will go back to Moffit and stay there for trial. This is very new to us and we are confused and frightened. If there is anything you can suggest or add we would be greatful. Her Oncologist doesn't have another patient with CUP, but we told by the Moffitt team that he was giving her the proper chemo treatment at this time.
Appreciate any input you can give us.
Cocoe