I have many symptoms of pc and am very sick, but had a normal ct so my medical plan/doctor won't do EUS or ERCP, are saying it is irritable bowel syndrome. I have an appointment Monday with the hospital's patient advocate to try to convince her to intervene and get these tests done. I want to give her copies of reliable, documented information showing that :
1. ct scans miss many small tumors 2. EUS and ERCP are more reliablediagnostic tests
3. Sometimes people with pc have many normal test results and are only diagnosed when a doctor goes in to take a look.
4. Many people with pc are misdiagnosed and/or too slowly diagnosed, and so when they finally are diagnosed it is advanced and treatment options/prognosis is limited, a situation that could be prevented witha more agressive diagnostic timeline.
I have seen many messages about 3 and 4 on this message board but need to find sometime from a medical source. I would appreciate any web sites you can refer me to. Thank-you, Teresa