Thank you to everyone who so honestly and thoughtfully responded.
Have any of you had experience with stomach bloating? My father is now having that and the feeding tube is leaking quite a bit at the inciscion site. He had ct scans, mri or xrays today - tech thinks it is "air pockets" not fluid build up in his stomach.....It seems there is one challenge after another...which leads to more questions.
Thank you for all of your advice, insights and kind words. I keep you each in my prayers.
Tracy