Hi,
I really don't have any advice, because I am in the same boat. But I wanted to let you know you're not alone. I'm also 27, and have ET. I was recently diagnosed, however have had elevated platelets since 1999. My particular side effects have a wide range unfortunately from headaches, unequal pupils, burning hands, EXTREME fatigue, red spots, bruising, bleeding, vertigo, fainting, etc. It's all very frustrating--- the amount of time it takes for a dx (I saw my first hem/onc IN 1999....), the medications, the feeling like crap basically all the time, and then still attempting to live with as much normalcy as you can muster. But, in the end all we can do is push along, try to do right by our bodies, and still take the time to "smell the roses" so-to-speak. If you ever need to vent, feel free. You're not alone.
Dee